Web-Based Patient-Reported Outcomes for ENT Patients—Evaluation of the Status Quo, Patients’ View, and Future Perspectives
Abstract
:1. Introduction
2. Materials and Methods
3. Results
3.1. Internet Access and Use of the Whole Cohort of ENT Patients
3.2. Internet Access and Use by HNC Patients vs. Other ENT Patients
3.3. Chances and Future Imagination of ePROMs from the View of the Whole Cohort of ENT Patients
3.4. Patients’ View on Chances and Future Prospects of ePROM Use
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Common Consultation Hour * | Tumor Aftercare * | Internet Users ° | Non- Internet Users ° | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
n | % | n | % | p Value | n | % | n | % | p Value | ||
Total n | 192 | 100 | 184 | 100 | 297 | 100 | 116 | 100 | |||
Sex | Male | 106 | 55.2 | 136 | 73.9 | <0.001 | 186 | 62.6 | 76 | 65.5 | 0.705 |
Female | 81 | 42.2 | 42 | 22.8 | 99 | 33.3 | 37 | 31.9 | |||
Missing values | 5 | 2.6 | 6 | 3.3 | 12 | 4.0 | 3 | 2.6 | |||
Age categories [years] | Mean | 51.4 | 64.3 | <0.001 | 54.4 | 67.8 | <0.001 | ||||
Standard deviation | 17.7 | 10.6 | 16.0 | 11.6 | |||||||
Minimum | 20 | 29 | 20 | 40 | |||||||
Maximum | 90 | 88 | 88 | 90 | |||||||
18 to 29 | 24 | 12.5 | 1 | 0.5 | <0.001 | 26 | 8.8 | 0 | 0 | <0.001 | |
30 to 39 | 30 | 15.6 | 2 | 1.1 | 35 | 11.8 | 0 | 0 | |||
40 to 49 | 39 | 20.3 | 10 | 5.4 | 45 | 15.2 | 7 | 6.0 | |||
50 to 59 | 34 | 17.7 | 47 | 25.5 | 65 | 21.9 | 21 | 18.1 | |||
60 to 69 | 29 | 15.1 | 66 | 35.9 | 68 | 22.9 | 37 | 31.9 | |||
70 to 79 | 24 | 12.5 | 37 | 20.1 | 41 | 13.8 | 26 | 22.4 | |||
>80 | 10 | 5.2 | 18 | 9.8 | 10 | 3.4 | 25 | 21.6 | |||
Missing values | 2 | 1.0 | 3 | 1.6 | 7 | 2.4 | 0 | 0 | |||
Education | Professional training | 81 | 42.2 | 97 | 52.7 | 0.023 a | 129 | 43.4 | 71 | 61.2 | <0.001 |
Technical college | 23 | 11.9 | 16 | 8.7 | 35 | 11.8 | 9 | 7.8 | |||
University of applied sciences | 19 | 9.9 | 23 | 12.5 | 41 | 13.8 | 4 | 3.5 | |||
University degree | 46 | 24.0 | 22 | 12.0 | 65 | 21.9 | 6 | 5.2 | |||
Other | 10 | 5.2 | 14 | 7.6 | 12 | 4.0 | 12 | 10.3 | |||
None | 9 | 4.7 | 5 | 2.7 | 12 | 4.0 | 4 | 3.5 | |||
Missing values | 4 | 2.1 | 7 | 3.8 | 3 | 1.0 | 10 | 8.6 | |||
Internet use | Yes | 161 | 83.9 | 117 | 63.6 | <0.001 | |||||
No | 29 | 15.1 | 67 | 36.4 | |||||||
Missing values | 2 | 1.0 | 0 | 0 |
Common Consultation Hour | Tumor Aftercare | Internet Users | Non-Internet Users | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
n | % | n | % | p Value | n | % | n | % | p Value | ||
Total n | 192 | 100 | 184 | 100 | 297 | 100 | 116 | 100 | |||
Do you own a web-enabled device? | Smartphone | 59 | 30.7 | 63 | 34.2 | <0.001 | 76 | 25.6 | 61 | 52.6 | <0.001 |
Tablet | 2 | 1.0 | 2 | 1.1 | 4 | 1.4 | 0 | 0 | |||
PC | 5 | 2.6 | 16 | 8.7 | 18 | 6.1 | 3 | 2.6 | |||
None | 13 | 6.8 | 30 | 16.3 | 5 | 1.7 | 49 | 42.2 | |||
More than one | 113 | 58.9 | 73 | 39.7 | 193 | 65.0 | 3 | 2.6 | |||
Missing values | 0 | 0 | 0 | 0 | 1 | 0.3 | 0 | 0 | |||
Which operating system do you use? | iOS | 34 | 17.7 | 10 | 5.4 | 0.001 | 45 | 15.2 | 0 | 0 | <0.001 |
Android | 80 | 41.7 | 72 | 39.1 | 152 | 51.2 | 11 | 9.5 | |||
Other | 4 | 2.1 | 10 | 5.4 | 15 | 5.1 | 1 | 0.9 | |||
Don’t know | 30 | 15.6 | 37 | 20.1 | 37 | 12.5 | 40 | 34.5 | |||
More than one | 25 | 13.0 | 10 | 5.4 | 35 | 11.8 | 1 | 0.9 | |||
Missing values | 19 | 9.9 | 45 | 24.5 | 13 | 4.4 | 63 | 54.3 | |||
Main reasons for being online? (Multiple answers possible.) | 133 | 69.3 | 92 | 50.0 | <0.001 | 235 | 79.1 | 5 | 4.3 | <0.001 | |
Chatting | 72 | 37.5 | 29 | 15.8 | 100 | 33.7 | 2 | 1.7 | |||
Online communities | 54 | 28.1 | 20 | 10.9 | 77 | 25.9 | 2 | 1.7 | |||
Research | 133 | 69.3 | 97 | 52.7 | 234 | 78.8 | 7 | 6.0 | |||
Shopping | 98 | 51.0 | 59 | 32.1 | 166 | 55.9 | 2 | 1.7 | |||
Work tasks | 83 | 43.2 | 28 | 15.2 | 113 | 38.0 | 3 | 2.6 | |||
Other | 13 | 6.8 | 9 | 4.9 | 5 | 1.7 | 10 | 8.6 | |||
Not answered | 34 | 17.7 | 60 | 32.6 | 19 | 6.4 | 91 | 78.4 | |||
Do you use the internet for research concerning health? | Yes | 65 | 33.9 | 41 | 22.3 | 0.011 | 112 | 37.7 | 2 | 1.7 | <0.001 |
No | 108 | 56.3 | 125 | 67.9 | 171 | 57.6 | 87 | 75.0 | |||
Missing values | 19 | 9.9 | 18 | 9.8 | 14 | 4.7 | 27 | 23.3 | |||
How many hours a day do you spend on the internet for private use on average? | <30 min | 25 | 13.0 | 29 | 15.8 | <0.001 | 50 | 16.8 | 7 | 6.0 | <0.001 |
<1 h | 31 | 16.2 | 36 | 19.6 | 67 | 22.6 | 4 | 3.5 | |||
1 to 2 h | 48 | 25.0 | 37 | 20.1 | 90 | 30.3 | 0 | 0 | |||
2 to 3 h | 24 | 12.5 | 10 | 5.4 | 35 | 11.8 | 0 | 0 | |||
3 to 4 h | 12 | 6.3 | 3 | 1.6 | 17 | 5.7 | 1 | 0.9 | |||
4 to 5 h | 5 | 2.6 | 0 | 0 | 6 | 2.0 | 0 | 0 | |||
5 to 6 h | 6 | 3.1 | 1 | 0.5 | 7 | 2.4 | 0 | 0 | |||
>6 h | 3 | 1.6 | 0 | 0 | 3 | 1.0 | 0 | 0 | |||
None | 16 | 8.3 | 48 | 26.1 | 5 | 1.7 | 73 | 62.9 | |||
Missing values | 22 | 11.5 | 20 | 10.9 | 17 | 5.7 | 31 | 26.7 | |||
How many hours a day do you spend on the internet for work-related tasks on average? | <30 min | 20 | 10.4 | 13 | 7.1 | <0.001 | 33 | 11.1 | 2 | 1.7 | <0.001 |
<1 h | 20 | 10.4 | 10 | 5.4 | 29 | 9.7 | 1 | 0.9 | |||
1 to 2 h | 25 | 13.0 | 6 | 3.3 | 33 | 11.1 | 0 | 0 | |||
2 to 3 h | 13 | 6.8 | 4 | 2.2 | 18 | 6.1 | 1 | 0.9 | |||
3 to 4 h | 7 | 3.7 | 2 | 1.1 | 9 | 3.0 | 0 | 0 | |||
4 to 5 h | 10 | 5.2 | 1 | 0.5 | 11 | 3.7 | 1 | 0.9 | |||
5 to 6 h | 7 | 3.7 | 4 | 2.2 | 11 | 3.7 | 0 | 0 | |||
>6 h | 13 | 6.8 | 5 | 2.7 | 17 | 5.7 | 1 | 0.9 | |||
None | 58 | 30.2 | 109 | 59.3 | 113 | 38.1 | 72 | 62.1 | |||
Missing values | 19 | 9.9 | 30 | 16.3 | 23 | 7.7 | 38 | 32.8 | |||
How do you get information concerning your health issue? (Multiple answers possible.) | Doctors | 155 | 80.7 | 151 | 82.1 | 0.025 a | 259 | 87.2 | 72 | 62.1 | <0.001 |
Friends | 17 | 8.9 | 12 | 6.5 | 28 | 9.4 | 3 | 2.6 | |||
Magazines | 6 | 3.1 | 14 | 7.6 | 17 | 5.7 | 4 | 3.5 | |||
Internet | 78 | 40.6 | 54 | 29.4 | 135 | 45.5 | 2 | 1.7 | |||
TV | 3 | 1.6 | 9 | 4.9 | 10 | 3.4 | 2 | 1.7 | |||
Other | 5 | 2.6 | 6 | 3.3 | 8 | 2.7 | 3 | 2.6 | |||
Not answered | 24 | 12.5 | 25 | 13.6 | 21 | 7.1 | 40 | 34.5 | |||
How much time do you spent on the internet for research concerning health issues? | <1 h | 76 | 39.6 | 59 | 32.1 | 0.710 | 116 | 39.1 | 26 | 22.4 | 0.001 |
1 to 4 h | 34 | 17.7 | 25 | 13.6 | 66 | 22.2 | 2 | 1.7 | |||
4 to 8 h | 11 | 5.7 | 14 | 7.6 | 27 | 9.1 | 0 | 0 | |||
8 to 16 h | 5 | 2.6 | 6 | 3.3 | 11 | 3.7 | 0 | 0 | |||
16 to 24 h | 4 | 2.1 | 4 | 2.2 | 8 | 2.7 | 0 | 0 | |||
1 to 3 days | 5 | 2.6 | 1 | 0.5 | 6 | 2.0 | 0 | 0 | |||
3 to 7 days | 3 | 1.6 | 1 | 0.5 | 4 | 1.4 | 0 | 0 | |||
>7 days | 10 | 5.2 | 9 | 4.9 | 19 | 6.4 | 0 | 0 | |||
Missing values | 44 | 22.9 | 65 | 35.3 | 40 | 13.5 | 88 | 75.9 | |||
Please rate the information published on the internet. | 1 very good | 3 | 1.6 | 2 | 1.1 | 0.222 | 5 | 1.7 | 2 | 1.7 | 0.001 |
2 | 38 | 19.8 | 35 | 19.0 | 74 | 24.9 | 5 | 4.3 | |||
3 | 68 | 35.4 | 43 | 23.4 | 113 | 38.1 | 3 | 2.6 | |||
4 | 23 | 12.0 | 10 | 5.4 | 31 | 10.4 | 4 | 3.5 | |||
5 | 7 | 3.7 | 5 | 2.7 | 11 | 3.7 | 1 | 0.9 | |||
6 deficient | 2 | 1.0 | 6 | 3.3 | 5 | 1.7 | 3 | 2.6 | |||
Missing values | 51 | 26.6 | 83 | 45.1 | 58 | 19.5 | 98 | 84.5 | |||
Have you ever visited a medical website? | Yes | 68 | 35.4 | 40 | 21.7 | 0.013 | 110 | 37.0 | 2 | 1.7 | <0.001 |
No | 105 | 54.7 | 112 | 60.9 | 170 | 57.2 | 66 | 56.9 | |||
Missing values | 19 | 9.9 | 32 | 17.4 | 17 | 5.7 | 48 | 41.4 | |||
Did you search the web for information about your medical treatment? | Yes | 50 | 26.0 | 35 | 19.0 | 0.277 | 88 | 29.6 | 2 | 1.7 | <0.001 |
No | 120 | 62.5 | 111 | 60.3 | 181 | 60.9 | 73 | 62.9 | |||
Missing values | 22 | 11.5 | 38 | 20.7 | 28 | 9.4 | 41 | 35.3 | |||
Was the information on the web helpful? | Yes | 43 | 22.4 | 39 | 21.2 | 0.782 | 85 | 28.6 | 2 | 1.7 | <0.001 |
No | 87 | 45.3 | 85 | 46.2 | 128 | 43.1 | 66 | 56.9 | |||
Missing values | 62 | 32.3 | 60 | 32.6 | 84 | 28.3 | 48 | 41.4 | |||
Would you like to make appointments via email? | Yes | 103 | 53.7 | 50 | 27.2 | <0.001 | 158 | 53.2 | 4 | 3.5 | <0.001 |
No | 64 | 33.3 | 93 | 50.5 | 107 | 36.0 | 69 | 59.5 | |||
Missing values | 25 | 13.0 | 41 | 22.3 | 32 | 10.8 | 43 | 37.1 |
Common Consultation Hour | Tumor Aftercare | Internet Users | Non-Internet Users | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
n | % | n | % | p Value | n | % | n | % | p Value | ||
Total n | 192 | 100 | 184 | 100 | 297 | 100 | 116 | 100 | |||
Can you imagine communicating via APP with your physician/hospital? | Yes | 116 | 60.4 | 78 | 42.4 | <0.001 | 194 | 65.3 | 12 | 10.3 | <0.001 |
No | 72 | 37.5 | 103 | 56.0 | 100 | 33.7 | 99 | 85.3 | |||
Missing values | 4 | 2.1 | 3 | 1.6 | 3 | 1 | 5 | 4.3 | |||
How often would you like to answer a questionnaire as a patient with cancer or any other chronic disease? | Once a week or more | 11 | 5.7 | 3 | 1.6 | <0.001 | 12 | 4 | 4 | 3.5 | 0.002 |
At least twice a month | 31 | 16.2 | 13 | 7.1 | 38 | 12.8 | 9 | 7.8 | |||
Once a month | 47 | 24.5 | 34 | 18.5 | 77 | 25.9 | 11 | 9.5 | |||
Once every 2 months | 8 | 4.2 | 15 | 8.2 | 17 | 5.7 | 8 | 6.9 | |||
Once every 3 months | 29 | 15.1 | 78 | 42.4 | 74 | 24.9 | 40 | 34.5 | |||
Less frequently | 37 | 19.3 | 35 | 19.0 | 52 | 17.5 | 31 | 26.7 | |||
Missing values | 29 | 15.1 | 6 | 3.3 | 27 | 9.1 | 13 | 11.2 | |||
How much time would you spend on a recurrent online questionnaire? | <2 min | 14 | 7.3 | 12 | 6.5 | 0.148 | 21 | 7.1 | 7 | 6.0 | 0.336 |
<5 min | 52 | 27.1 | 29 | 15.8 | 75 | 25.3 | 12 | 10.3 | |||
<10 min | 54 | 28.1 | 54 | 29.4 | 97 | 32.6 | 18 | 15.5 | |||
<15 min | 24 | 12.5 | 29 | 15.8 | 45 | 15.2 | 11 | 9.5 | |||
<20 min | 16 | 8.3 | 20 | 10.9 | 27 | 9.1 | 10 | 8.6 | |||
Missing values | 32 | 16.7 | 40 | 21.7 | 32 | 10.8 | 58 | 50 | |||
How many questions would you agree to answer regularly? | <10 | 77 | 40.1 | 60 | 32.6 | 0.204 | 107 | 36 | 44 | 37.9 | 0.051 |
11–20 | 70 | 36.5 | 65 | 35.3 | 122 | 41.1 | 20 | 17.2 | |||
21–30 | 17 | 8.9 | 22 | 12.0 | 32 | 10.8 | 9 | 7.8 | |||
31–40 | 3 | 1.6 | 7 | 3.8 | 8 | 2.7 | 3 | 2.6 | |||
41–50 | 0 | 0 | 2 | 1.1 | 1 | 0.3 | 1 | 0.9 | |||
>50 | 0 | 0 | 1 | 0.5 | 1 | 0.3 | 0 | 0 | |||
Missing values | 25 | 13 | 27 | 14.7 | 26 | 8.8 | 39 | 33.6 | |||
Do you think you could collect health data (e.g., state of health, heart rate, blood pressure, etc.), if necessary, supported by the APP? | Yes | 79 | 41.2 | 60 | 32.6 | 0.004 | 134 | 45.1 | 18 | 15.5 | <0.001 |
Rather yes | 31 | 16.2 | 26 | 14.1 | 52 | 17.5 | 6 | 5.8 | |||
Undecided | 21 | 10.9 | 15 | 8.2 | 32 | 10.8 | 5 | 4.3 | |||
Rather no | 19 | 9.9 | 18 | 9.8 | 27 | 9.1 | 10 | 8.6 | |||
No | 20 | 10.4 | 48 | 26.1 | 30 | 10.1 | 49 | 42.2 | |||
Missing values | 22 | 11.5 | 17 | 9.2 | 22 | 7.4 | 28 | 24.1 | |||
Do you think that using an APP in addition to regular doctor visits would improve patient care? | Yes | 59 | 30.7 | 36 | 19.6 | <0.001 | 86 | 29 | 16 | 13.8 | <0.001 |
Rather yes | 43 | 22.4 | 28 | 15.2 | 72 | 24.2 | 4 | 3.5 | |||
Undecided | 38 | 19.8 | 37 | 20.1 | 63 | 21.2 | 17 | 14.7 | |||
Rather no | 12 | 6.3 | 16 | 8.7 | 23 | 7.7 | 7 | 6.0 | |||
No | 18 | 9.4 | 48 | 26.1 | 30 | 10.1 | 44 | 37.9 | |||
Missing values | 22 | 11.5 | 19 | 10.3 | 23 | 7.7 | 28 | 24.1 | |||
Would you use an APP to transfer your health data to your hospital? | Yes | 66 | 34.4 | 53 | 28.8 | 0.002 | 118 | 39.7 | 11 | 9.5 | <0.001 |
Rather yes | 38 | 19.8 | 21 | 11.4 | 57 | 19.2 | 5 | 4.3 | |||
Undecided | 19 | 9.9 | 23 | 12.5 | 33 | 11.1 | 9 | 7.8 | |||
Rather no | 21 | 10.9 | 18 | 9.8 | 32 | 10.8 | 9 | 7.8 | |||
No | 24 | 12.5 | 51 | 27.7 | 32 | 10.8 | 55 | 47.4 | |||
Missing values | 24 | 12.5 | 18 | 9.8 | 25 | 8.4 | 27 | 23.3 | |||
Under which conditions would you agree to transfer your health data online? (Multiple answers possible.) | Data safety | 134 | 69.8 | 106 | 57.6 | <0.001 | 224 | 75.4 | 34 | 29.3 | <0.001 |
Answer received ° | 91 | 47.4 | 61 | 33.2 | 146 | 49.2 | 11 | 9.5 | |||
Personal advantage | 68 | 35.4 | 39 | 21.2 | 103 | 34.7 | 11 | 9.5 | |||
Editing personal data | 70 | 36.5 | 38 | 20.7 | 105 | 35.4 | 9 | 7.8 | |||
Reduce doctor visits | 44 | 22.9 | 28 | 15.2 | 66 | 22.2 | 10 | 8.6 | |||
Other | 5 | 2.6 | 2 | 1.1 | 8 | 2.7 | 0 | 0 | |||
Not answered | 37 | 19.3 | 46 | 25 | 33 | 11.1 | 64 | 55.2 | |||
Can you imagine replacing some doctor appointments by an online consultation? | Yes | 83 | 43.2 | 48 | 26.1 | <0.001 | 135 | 45.5 | 7 | 6.0 | <0.001 |
No | 87 | 45.3 | 127 | 69.0 | 144 | 48.5 | 93 | 80.2 | |||
Missing values | 22 | 11.5 | 9 | 4.9 | 18 | 6.1 | 16 | 13.8 |
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Wald, T.; Zebralla, V.; Boege, M.; Kunz, V.; Neumuth, T.; Dietz, A.; Wichmann, G.; Wiegand, S. Web-Based Patient-Reported Outcomes for ENT Patients—Evaluation of the Status Quo, Patients’ View, and Future Perspectives. Int. J. Environ. Res. Public Health 2022, 19, 11773. https://doi.org/10.3390/ijerph191811773
Wald T, Zebralla V, Boege M, Kunz V, Neumuth T, Dietz A, Wichmann G, Wiegand S. Web-Based Patient-Reported Outcomes for ENT Patients—Evaluation of the Status Quo, Patients’ View, and Future Perspectives. International Journal of Environmental Research and Public Health. 2022; 19(18):11773. https://doi.org/10.3390/ijerph191811773
Chicago/Turabian StyleWald, Theresa, Veit Zebralla, Maren Boege, Viktor Kunz, Thomas Neumuth, Andreas Dietz, Gunnar Wichmann, and Susanne Wiegand. 2022. "Web-Based Patient-Reported Outcomes for ENT Patients—Evaluation of the Status Quo, Patients’ View, and Future Perspectives" International Journal of Environmental Research and Public Health 19, no. 18: 11773. https://doi.org/10.3390/ijerph191811773